Organisation: Atomica Informatics
Email: heather.leslie@atomicainformatics.com
Date originally authored: 2021-03-01
Organisation: Atomica Informatics
Email: heather.leslie@atomicainformatics.com
Date originally authored: 2021-03-01
- Licence: This work is licensed under the Creative Commons Attribution-ShareAlike 4.0 International License. To view a copy of this license, visit http://creativecommons.org/licenses/by-sa/4.0/.
- Custodian Organisation: openEHR Foundation
- References:
- Current Contact: Heather Leslie, Atomica Informatics, Australia, ,heather.leslie@atomicainformatics.com
- Original Namespace: org.openehr
- Original Publisher: openEHR Foundation
- Custodian Namespace: org.openehr
- MD5-CAM-1.0.1: F2C8B5BC5C5D6F61458BD5BD7BFC5885
- Build Uid: d6e090ae-63f2-4a4b-80ba-8c7a63d4c2c1
- Revision: 0.0.1-alpha
Choice of:
Coded Text- Up-to-date for age [The individual's developmental milestone achievements are consistent with what is expected for their age.]
- Not up-to-date for age [The individual's developmental milestone achievements are not consistent with what is expected for their age.]
Text
Coding with an external terminology is recommended. Free text entry should only be permitted if no appropriate coded value is available.
- Typical [The individual's developmental progress is consistent with what is expected for their age.]
- Acute/Temporary [The individual's developmental progress has changed in the short term, usually in response to a transient condition such as illness, injury, hospitalisation, or psychosocial stressors, but is expected to improve over time.]
- Delayed [The individual's developmental progress is behind what is expected for their age, but is expected to improve over time.]
- Permanent impairment [The individual's developmental progress is behind what is expected for their age and is not expected to improve over time.]
- Plateau/Lack of progress [The individual's developmental progress has stalled, but is expected to improve over time.]
- Indeterminate [The individual's developmental trajectory cannot be determined due to insufficient, unclear, or conflicting information.]
Record one instance of this cluster per milestone.
For example: walking independently, speaking first words, and using a pincer grasp to pick up small objects. Coding with an external terminology is recommended. Free text entry should only be permitted if no appropriate coded value is available.
Each category is used to classify milestones into commonly recognised areas of child development and to support monitoring of progress at the domain level. Coding with an external terminology is recommended. Free text entry should only be permitted if no appropriate coded value is available.
Choice of:
- Coded Text
- Physical - gross motor
- Physical - fine motor
- Cognitive
- Language
- Social
- Emotional
- Text
Coding with an external terminology is recommended. Free text entry should only be permitted if no appropriate coded value is available.
- Typical [The individual's developmental progress is consistent with what is expected for their age.]
- Acute/Temporary [The individual's developmental progress has changed in the short term, usually in response to a transient condition such as illness, injury, hospitalisation, or psychosocial stressors, but is expected to improve over time.]
- Delayed [The individual's developmental progress is behind what is expected for their age, but is expected to improve over time.]
- Permanent impairment [The individual's developmental progress is behind what is expected for their age and is not expected to improve over time.]
- Plateau/Lack of progress [The individual's developmental progress has stalled, but is expected to improve over time.]
- Indeterminate [The individual's developmental trajectory cannot be determined due to insufficient, unclear, or conflicting information.]
"Reported as achieved" may be used to support documentation by carers or others when the milestone achievement is entered into a citizen's health record but cannot be directly witnessed or verified by a clinician. Coding with an external terminology is recommended. Free text entry should only be permitted if no appropriate coded value is available.
- Achieved [The milestone has been completed and either directly observed or reliably confirmed by a healthcare professional.]
- Reported as achieved [The milestone has been completed based on information provided by a parent, caregiver, or other observer, but has not been directly observed by a healthcare professional.]
- Not achieved [The milestone has not yet been completed or demonstrated by the individual.]
The younger the child, especially under 1 year, the greater the precision expected, but approximations are acceptable when this is the only information available and clearly identified as such in the health record, for example '~August 1, 2025'. For older children, or when information is recorded long after the event, partial dates such as month and year may be recorded. Where only an age is known, it should be converted to an approximate date and recorded using this data element.
The date on which the 'Status' for the identified 'Milestone name' is documented.
For example, include commentary about the child belly crawling instead of typical hands-and-knees crawling.
For example: prematurity, Down syndrome, recurrent ear infections, Autism Spectrum Disorder (ASD). Coding with an external terminology is recommended. Free text entry should only be permitted if no appropriate coded value is available.
Choice of:
- Coded Text
- Text
For example: emotional neglect; neurodegenerative disease, hearing loss, or Autism Spectrum Disorder (ASD). Coding with an external terminology is recommended. Free text entry should only be permitted if no appropriate coded value is available.
Choice of:
- Coded Text
- Text
Include:
All not explicitly excluded archetypes
Include:
All not explicitly excluded archetypes
For example: local information requirements; or additional metadata to align with FHIR.
Include:
All not explicitly excluded archetypes
Kim Drever, Kudos Paediatrics, Australia
Nyree Taylor, CSIRO, Australia